Saturday, January 26, 2008

A new day, some good friends

Well, for those of you who are following along in our journey, we had some bright spots in our day today. We had a visitor from some friends--all of whom showed up at the same time. The guy who looks a little like John the Baptist in the picture here is our worship/youth minister, Tom. He played Guitar Hero with Amanda and may actually prove to be a formidable opponent....one day (maybe). And yes, the two lovely gals in the front are indeed twins. Their mom, Cydney, was next to me. That's Bob next to Tom the Baptist (well, non-denominational, actually) and Heather at the foot of the bed.



With all the visitors, I definitely was able to get over my 'personal bubble' as Amanda calls it, or need for my own space. This room felt for a while like the Utube video of all the people in the wave pool in Japan. Google it.



The praise request today is that the doc said she could still play it (but for limited periods of time) and it came in very handy in keeping her distracted while they inserted her hep lock. She has notoriously bad veins, so distraction was wonderful. It helped also that all these folks were in the room when the I.V. tech showed up. We feel very loved and supported.



And note to our friend JR: ask your kids what Guitar Hero is. They will know!!



Unfortunately, the doc said her eeg readings of the last 24 hours were absolutely beautiful--which is great if you're not on a seizure hunt. So tonight, we reduced another chunk of her meds and will reduce more tomorrow. She is holding up well, but tired, which is good. She started on book #2 a while ago. At this rate, we may have not brought enough of them!




This picture is of the view from our window, which we expect to see for the next few (?) days. The red-roofed building is Bob's favorite pizza place in the world (except Goodfellas in Orlando). It's called 'Perfect Pizza,' and he dines there often enough during the work week that the counter guys don't bother asking him what he wants anymore. But now, the rest of us get to 'enjoy' it...and have had two doses of it already. I suspect there will be more brought in soon. Ugh. But the girls are always happy when Daddy does dinner.


We have received more cards, calls, gifts, emails and love than we possibly imagined. I am having a hard time remembering to call and email everyone back, so now I need to hope for grace too. But so far, we feel firmly carried by your love, support and prayers, and are resting in the shadow of the Almighty. Tomorrow may be a busy day, but we will wait for tomorrow to bring itself here with it's own worries.


Oh-before he left, Tom the Baptist (non-denominational, actually) prayed with us and prayed for Amanda to have seizures. It felt weird hearing that from someone else. But I guess that 'soon' is how we are praying now. Thanks for joining us.


Blessings,

Megan

1 comment:

Kit and Kat said...

hey amanda,
its me jordan. wait i have to write my name in caps.JORDAN
okay i have that out of my system.
well i had my first horse riding lesson yesterday. my but is still sore from the saddle and my legs are still sore from having to stand up in the saddle.
oh hey i found some funny show on youtube.com with some help from friends. here they are: Chad Vader, Fred on the fourth, 300 pg version, naruto fan flashes( look at episode 2 + 5 they are very funny),naruto dance flash 2, and i dont know why i started watching this, my friend is watching it too, sailor moon, (hat old show from when i was like 8) strawberry short cake( also called "the cuppy cake song"), and the last one is one that will crack you up because not very many people can do that in this world, its called flute player and beat boxer.

oh and if you ever want to read my blog just type in www.funnygirlkat.blogspot.com, but you already know that soooo i will see you soon. oh and another thing all the youtube video i wrote down, they are really really funny and i hope you have a good time watching them. well if you want to read any books when your done reading yours just call me and i send some over pronto.

Your Friend
JORDAN