All Settled In

Well, we're here and settled in. This is a great hospital, as far as hospitals go. It's a teaching hospital so you get a new resident and his team at each shift change, etc. But everyone here is very kind and helpful.

Being here, especially in the main waiting areas and reception, really makes me certain that I am a great big baby. Seeing other kids being checked in with pink caps covering heads made bare from chemo, and other kids who are wheelchair-bound makes me feel pretty ashamed for my own fears. She is safer here then she's been in any environment for years, and the care team here has all the stuff they need handy. And even if doctors blink, God doesn't.

The only time I've seen the kiddo anxious was on the elevator up to the room. She had that 'wish I could bolt and run' look for a few minutes, but once we got in and she got a book in her hands, all was right with the world.

Amanda's had her first round of eeg's this evening, but she's wired up to a continuous 24 hour system, and the room has multiple cameras and microphones, which makes us feel weird. The lack of privacy is a bit unnerving.

They used a really strong smelling epoxy-resin type stuff to cement the leads to her scalp, but she took it all in stride and has been pretty comfortable, either with that book or Guitar Hero on her lap most of the time. Bob and Heather were in this evening for a while and Amanda whooped him round after round, as usual. I can't imagine what those eeg's look like when she's playing that thing!

Tonight and tomorrow should be fairly laid back in terms of trying to induce seizure activity. If nothing happens on it's own, they will start pushing her a little harder on Sunday and Monday. We have been told they may do some sleep deprivation stuff, some stress test type things (stationary bikes) and some more strobe lights.

Just now we had our first crisis--the nurse working tonight said we have to limit electronic interaction. She may have to give up the Guitar Hero!! Oh man. Well, that's something else to pray about I guess. :-)

Time to get ready for bed....thanks for reading!

Megan