Amanda is an advocate-in-training. Apparently she has inherited my desire for rabble-rousing and not being satisfied with the status quo.
Tonight, Amanda made the decision to attend the 2nd Anual Walk for Epilepsy on the National Mall in Washigton DC on March 29th.
In addition, we are working towards the creation of a local group, Spring Hill Advocacy for Kids with Epilepsy. Gotta love that acronysm for kids with seizures: SHAKE! Don't worry--it's approved by the charter member herself.
The initial goal of this local group will be to help raise awareness of this condition, and encourage folks to support her as she attends this national walk for Epilepsy. I suspect SHAKE will have much larger purpose as we move forward, though. More on SHAKE to come!
Did you know that Epilepsy is the third most-common neurological condition after Alzheimer's and strokes and affects more than three million Americans? Few people know that it can affect anyone, anywhere at any time. The Epilepsy Foundation, a national voluntary health organization established in 1968, works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.
The Walk's motto is "Not another moment lost to sezures". Given the number of years we have spent dealing with the effects of this condition, we absolutely understand this creed. In the days and weeks ahead, we will begin raising money towards the SHAKE team's goal for the walk.
You will also be able to participate with us on our journey as we blog the event and report from the location. And yes, you will also be asked to help us as we seek to raise our financial goals.
Currently, we are seeking matching grants of any amounts to get the ball rolling. Would you please consider how you might be part of Amanda's walk? All donations will, of course, be tax-deductible.
Meanwhile, post your encouragement to Amanda (and her out-of-shape mom who will accompany her) as we prepare to walk on the National Mall to SHAKE up our community and help find a cure!
Blessings,
Megan
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6 comments:
Megan and Amanda, Sign me up to support both of you!!
Blessings,
Laurel
Hi Amanda. We think its great that you are joining the march for epilepsy awareness. It is a big undertaking and you are up to it.
We will support you efforts.
Love Granpaw and Grandma Garrison
Amanda,
I've always admired you because of your bravery in dealing with the condition you were born with. Because it is something you're used to, perhaps you don't think it's that big of a deal. I don't like to think that you were born with epilepsy, I like to think you were born with the strength and ability to overcome it instead.
I think it's great you're going on this walk, good luck to you and your mom!
I'll be thinking about you.
Love,
Katy
Amanda,
I've always admired you because of your bravery in dealing with the condition you were born with. Because it is something you're used to, perhaps you don't think it's that big of a deal. I don't like to think that you were born with epilepsy, I like to think you were born with the strength and ability to overcome it instead.
I think it's great you're going on this walk, good luck to you and your mom!
I'll be thinking about you.
Love,
Katy
Amanda,
I've always admired you because of your bravery in dealing with the condition you were born with. Because it is something you're used to, perhaps you don't think it's that big of a deal. I don't like to think that you were born with epilepsy, I like to think you were born with the strength and ability to overcome it instead.
I think it's great you're going on this walk, good luck to you and your mom!
I'll be thinking about you.
Love,
Katy
Dear Y'all Hawkes's:
If Amanda is half as good at raising money as she is at Guitar Hero, we'll get this epilepsy thing whupped in no time. Count on Susan and me as sponsors.
Love,
Uncle Tad
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